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In late 2007, my mum & dad came to visit us
in Norwich. Only seeing her once or twice each year, we noticed straight
away that mum's speech was slightly slurred - as though she had suffered
some sort of minor stroke. She had also been having choking attacks where
her larynx would spasm and close off her windpipe. This, I can only imagine
must have been terrifying - to be unable to breathe until the point of
almost passing out, when the larynx would then relax and allow her to
breathe again. Things were definitely not right.
Mum felt that her speech
problem was down to a poorly fitting dental plate. When this was re-fitted,
in early 2008 it didn't solve the problem and I think she was devastated.
She had been a nurse all of her working life and probably knew something
else was going on. She saw ENT specialists and eventually a friend of
my sister's who is a speech therapist suggested she seek attention from
a speech therapist. When a therapist checked in mum's mouth, she saw straight
away that her tongue had greatly reduced in size. Without saying what
she suspected, she recommended my mum see a neurologist.
In late September 2008 dad
took my mum to see the specialist for some test results. It was confirmed
that mum had Motor Neurone Disease. To say we were all shocked was an
understatement, but within days, mum in her usual style was saying how
there were many people much worse off than her and that the time we are
given on this earth is a gift.
She was put in touch with the local MND Association in Northern
Ireland. They provided her with information and supported her and
encouraged her throughout. Without this, I am sure she would not
have been so upbeat. My dad was also able to get answers to the
many questions that must have been going through his mind too. I
can't imagine how he coped knowing that his wife of nearly 50 years
was going to die, but at least there were people there with experience
of the disease that were able to support him.
Mum and dad visited us again in Norwich in early December 2008 and we
went to see them both over New Year that year. She was doing well and
was upbeat about her future. However, by late January 2009 she developed
complications and was taken into hospital. We went to N. Ireland to see
her in her ward where she reminded me of how she lost her mum when she
was in her teens. She knew exactly what was happening. Her condition deteriorated
and she came home from hospital in mid March 2009 after having had a tube
put into her stomach through which she was fed by a little pump.
On a regular basis she was visited by someone from the local MND association.
In her final days, she was also tended to by the Marie Curie nurses who
were excellent in every way and provided so much help for my father and
all of us as a family.
On 30th March 2009, my mum, Joan Duff passed away. She was 70 years
old.
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